This email address is being protected from spambots. You need JavaScript enabled to view it. / 01274 77 66 88

This email address is being protected from spambots. You need JavaScript enabled to view it.
01274 77 66 88

This email address is being protected from spambots. You need JavaScript enabled to view it.
01274 77 66 88

InformationPerhaps someone close to you has cancer and you want to know how to best support them, we can offer high quality, up to date cancer information and advice on a variety of subjects.  

You might want information on a particular type of cancer, the treatments or test and screening involved.

Maybe you are looking for information about work, diet, relationships, side effects or travel insurance.  It might be information about living with and after cancer, or for some it's about end of life care.  

The Cancer Information Room is based within the Support Centre, it can be accessed when the Support Centre is open, Monday - Friday 9-5.  

You don't have to make a special visit you can contact us by e-mail, telephone or through social media.  

Whichever way you choose, please get in touch for tailored information and advice that's right for you.

Tel: 01274 776688

E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

  • FAQs
  • Calendar
  • Useful Websites
  • Cancer Information
  • What's New
  • Support Groups
  • Health Professionals

There is certain information that we regularly get asked about, this includes things like parking, travel insurance and information on talking to children when an adult has cancer.

We hope you find this section useful and please contact us if you have a question or need any information or advice.

 

Getting Travel Insurance when you have been affected by cancer

http://finance.macmillan.org.uk/travel-insurance/getting-travel-insurance

You might also find this other booklet useful:-

Travel and Cancer - Information for people affected by cancer who are planning to travel

http://www.macmillan.org.uk/information-and-support/organising/travel-and-holidays

If you would like a hard copy please get in touch.

 

Is there any help with the cost of parking at the hospital for cancer patients and their families?

Concessionary car parking permits

Concessionary car parking permits are available for frequent attendees. These will be issued to the nearest relative or friend after having visited a patient for over seven days, or for those patients whose treatment requires them to make repeated attendance at a clinic or ward. Please get in touch for further information.

 

Do you have any information on healthy eating and exercise?

Recipes for People affected by cancer

http://www.macmillan.org.uk/information-and-support/coping/maintaining-a-healthy-lifestyle/recipes

If a booklet is required please contact us for details.

Healthy Eating and Cancer

http://www.macmillan.org.uk/information-and-support/coping/maintaining-a-healthy-lifestyle/healthy-eating

Physical Activity and Cancer Treatment

http://www.macmillan.org.uk/information-and-support/coping/maintaining-a-healthy-lifestyle/keeping-active

Please get in touch for details of other publications we have available.

 

Talking To Children

We have a booklet available entitled ‘Talking to children and teenagers when an adult has cancer’ as well as helpful books like Mummy’s lump and The secret C: straight talking about cancer, some resources are also available on loan.

Websites for young people include Riprap and youthhealthtalk

Information on talking to children is also available on the Macmillan Website:

http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Relationshipscommunication/Talkingtochildren/Talkingtochildren.aspx

 

Read More

2017 Awareness Calendar

January

Cervical Cancer Prevention Week ~ 22 - 28 January

February

Orchid Male Cancer Awareness Month

World Cancer Day ~ 4 February

Kidney Cancer Awareness Week ~ 6 - 12 February

March

Brain Tumour Awareness Month

Ovarian Cancer Awareness Month

Prostate Cancer Awareness Month

BLS Lymphoedema Awareness Week ~ 5 - 11 March

No Smoking Day ~ 8 March

April

Bowel Cancer Awareness Month

World Health Day ~ 7 April

 

May

Skin Cancer Awareness Month

World Ovarian Cancer Day ~ 8 May

Sun Awareness Week ~ 9 - 15 May

Dying Matters Week ~ 9 – 15 May 

National Women's Health Week ~ 14 - 20 May

World No Tobacco Day ~ 31 May

June

Everyman Male Cancer Awareness Month

Carers Week 12-18 June

Men's Health Week ~ 12 – 18 June

Cervical Screening Awareness Week ~ 12 – 18 June

Learning Disability Week ~ 19 - 25 June 

 

July

Ethnic Minority Cancer Awareness Month

 

August

----------

 

September

World Lymphoma Day ~ 15 September

Urology Awareness Month

Blood Cancer Awareness Month

 

October

Breast Cancer Awareness Month

Bone Cancer Awareness Week ~ 16 - 21 October

November

Men's Health Awareness Month

Lung cancer awareness

Mouth Cancer Action Month

National Pancreatic Cancer Awareness Month

 

December

----------

Read More

There are over 200 types of cancer and so many websites that it would be very hard to list them all here. The links below will take you to reputable websites that supply excellent and trustworthy information. These websites have a wide range of information available on all aspects of living with a cancer diagnosis, including types of cancer, cancer treatments and various advice and support to help with the effects of cancer. The websites can also tell you about other organisations and services available that can help.

Cancer Research UK (CancerHelp)

http://www.cancerresearchuk.org/cancer-help/type/

NHS Choices

http://www.nhs.uk/conditions/Cancer/Pages/Introduction.aspx

Macmillan Cancer Support

http://www.macmillan.org.uk/Cancerinformation/Cancerinformation.aspx

Health Talk

http://healthtalk.org/peoples-experiences/cancer

 


 

Read More

We’ve brought together some up to date reputable sources of information from all stages of the cancer journey. You might find the information you are looking for below, alternatively we have an Information Room here at the Support Centre where we have a whole range of leaflets and booklets available.

About Cancer

http://www.macmillan.org.uk/Cancerinformation/Aboutcancer/AboutcancerHome.aspx

 

What Is Cancer

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/what-is-cancer/

http://www.macmillan.org.uk/Cancerinformation/Causesriskfactors/Causesriskfactors.aspx

 

Your Cancer Type

http://www.cancerresearchuk.org/about-cancer/type/

http://www.macmillan.org.uk/Cancerinformation/Cancertypes/AtoZ.aspx

 

Cancer Treatments & Complementary Therapies

http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Treatments.aspx

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/complementary-alternative/

 

Cancer Drugs

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/cancer-drugs/

 

Radiotherapy

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/radiotherapy/

 

Surgery

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/surgery/

 

Other Treatments

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/other/

 

Cancer Tests & Screening

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/tests/

http://www.macmillan.org.uk/Cancerinformation/Testsscreening/Testsscreening.aspx

 

Causes & Symptoms

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/causes-symptoms/

 

Living With & After cancer

http://www.cancerresearchuk.org/about-cancer/coping-with-cancer/

http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Livingwithandaftercancer.aspx

 

If Someone Else Has Cancer

http://www.macmillan.org.uk/Cancerinformation/Ifsomeoneelsehascancer/Ifsomeoneelsehascancer.aspx

 

End Of Life & Dying With Cancer

http://www.macmillan.org.uk/Cancerinformation/Endoflife/Endoflife.aspx

 

Information In Other Languages & Formats

http://www.macmillan.org.uk/Cancerinformation/Otherformats/Informationinotherlanguages.aspx

Read More

Our information team like to keep up-to-date with new information and booklets, below you will find details of what's new at the moment.

If you would like a copy of any of the publications listed, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. or alternatively telephone us on 01274 77 66 88

 

Breast Cancer Care launches new app to help women move forward after breast cancer

Breast Cancer Care has launched the first app of its kind to help people move forward after a breast cancer diagnosis and treatment.

The innovative Breast Cancer Care App (BECCA) provides trustworthy and tailored information and support for people trying to adapt to daily life once hospital treatment ends.

The BECCA app can be downloaded now from the App Store, and on Google Play. Join the conversation with #CareApp

https://www.breastcancercare.org.uk/about-us/media/press-releases/breast-cancer-care-launches-new-app-help-women-move-forward-after

 

Marie Curie launches information for people with a learning disability

Marie Curie has launched a series of easy read booklets for people with a learning disability and those who have difficulty with understanding or processing information. The booklets aim to help people in these groups to discuss their concerns about death and dying, and get the care and support they need.

All the booklets can be downloaded online, or you can order hard copies by emailing This email address is being protected from spambots. You need JavaScript enabled to view it.

 

New resources for patients asking about social care

A new website providing resources to support older people and their relatives find information about social care in later life has been launched.

The website contains a leaflet and short film and covers basic information about social care, including what information different organisations can and cannot provide.

 

New self-management guides for men with prostate cancer

Prostate Cancer UK has launched an exciting new way of sharing health information with men. With their interactive online guides men can quickly identify the information that is of interest to them and find out what could help them manage their symptoms and side effects better.

There are five self-management guides:

• How to manage sex and relationships

• How to manage fatigue

• How to manage urinary problems

• How to manage symptoms and side effects of advanced prostate cancer

• How to manage chronic prostatitis

 

Men dangerously unaware of family link to prostate cancer

Two-thirds of men with a family history of prostate cancer are dangerously unaware of their increased risk of the disease and half of all UK men don’t know that a family link makes you two-and-a-half times more likely to get it, according to new research by Prostate Cancer UK.

https://prostatecanceruk.org/about-us/news-and-views/2017/6/men-dangerously-unaware-of-family-link-to-prostate-cancer-finds-new-research

 

Understanding patient data

The Wellcome Trust’s ‘understanding patient data’ taskforce has launched a new website. Its aim is to support conversations between the public, patients, and healthcare professionals about how health and care data is used, by providing information and evidence about the use of patient data.

https://understandingpatientdata.org.uk/

 

Improving the quality of outpatient letters – have your say!

The PRSB (Professional Records Standards Body) has launched a project to improve the content and standardise outpatient letters so that professionals, patients and carers receive consistent and reliable, high quality information.

As more care and a wider range of specialist services are delivered out of hospital, the importance of well-structured outpatient letters is essential to good communications between clinicians and patients.

They are the main method of contact and communication between hospital staff and GPs and communicate to the patient a record of the consultation and decisions. They are often the sole record of the consultation held by the outpatient department and hospital.

You can find out more information about the project and survey on the PRSB website here.

Closing date for survey responses: Midday, 13th March 2017

 

Talking about cancer – free online course

1 in 2 people will develop cancer in their lifetime. Cancer Research UK are offering a free online cancer awareness course Talking About Cancer, that has proved a huge success in helping build confidence and “know-how” to separate myths from facts and encourage healthy lifestyle changes and spotting cancer early.

Talking About Cancer has been developed by Cancer Research UK Talk Cancer trainers Gwen Kaplan and Gill Kilgour, drawing on their wealth of experience of talking to patients, families and healthcare professionals.

The course is free and delivered online. You can do it at your own pace, and it takes around three hours in total to complete. There’s an interactive discussion board to enable you to chat to other learners as you go.

The course is open from Monday 27 February 2017 but you can enrol right now at the Cancer Research UK website.

 

Have your say on informed consent guidance

The General Medical Council (GMC) has launched a review of their Consent Guidance.

Good consent practice is at the heart of the doctor-patient relationship, and the guidance sets out good practice principles for making decisions about care, from the treatment of minor conditions to major interventions with significant risks or side effects.

As part of the review, the GMC are inviting patients to share their experiences of discussing treatment and care with their doctors.

They have set up a short online survey where patients can feedback on what is important to them. The responses will be used to help update the guidance and make sure it’s clear, relevant and helpful.

You can find out more, and access the survey, on the GMC website. They survey is open until 19 March 2017.

 

Relaxation Audio

York Hospital have created a Relaxtion Audio to help people relax.

You can listen to the specially produced audio tracks, voiced by Carole White, Occupational Therapist with the Specialist Palliative Care Team by clicking on the link.

Themes/Tracks include:

- Introduction and guidelines for home practice
- Creating an imaginary bubble
- Deep muscle relaxation
- Autogenic relaxation
- Passive progressive muscular relaxation
- Guided imagery - a holiday stroll
- Quick relaxation technique

 

marie curie logoMarie Curie Helper Service

Marie Curie Helper is a volunteer befriending service – volunteers visit people with a terminal illness in their own homes for up to 3 hours every week. Helper volunteers provide companionship, emotional and practical support – they do not provide clinical care or complete domestic tasks.

Helper volunteers can remain in the home, or can take clients into the community for social activities, attending groups, going to appointments. Helper volunteers are matched to clients who are typically within the last 12 months of life, but can continue to visit carers / families for 3 or 4 months in bereavement too.

The service is free and referrals can be from any source. For more information visit: https://www.mariecurie.org.uk/help/helper-volunteers

 

 


 End of Life: A Guide 

End of Life A Guide

A booklet for people in the final stages of life, and their carers.

New updated edition of this booklet now available, please get in touch if you would like a copy.

 


 

 

 

 

New Publication From Target Ovarian Cancer “A younger Woman’s Guide to ovarian Cancer”

Target Ovarian CancerPosted by Target Ovarian Cancer on Thursday 2 July 2015...

Younger women's guide to ovarian cancer

We’re delighted to announce that Ovacome, Ovarian Cancer Action, Target Ovarian Cancer and The Eve Appeal have joined forces to produce an information guide for younger women diagnosed with ovarian cancer.

Every year 1,000 women under the age of 50 are diagnosed. On top of dealing with the emotions of a cancer diagnosis and the physical effects of treatment, younger women often face additional challenges including the loss of fertility, facing an early menopause, undergoing treatment whilst caring for young children, older relatives or a demanding job and struggling to cope with the financial burden a cancer diagnosis presents.

A younger woman’s guide to ovarian cancer provides crucial information, advice and signposting to help women through the emotional, physical and psychological impact.

For further details please click on the link:

http://www.targetovariancancer.org.uk/news/younger-womans-guide-ovarian-cancer-launched-today?utm_source=toc&utm_medium=email&utm_campaign=SS_hcp_promo_7_2015_114&utm_content=pinkbutton

You can also obtain a copy of this publication by calling into the Cancer Support centre or by Tel: 01274 776688 / E:mail: This email address is being protected from spambots. You need JavaScript enabled to view it.


 

New Publication – Cancer and Older People

This booklet can help if you have questions or concerns about cancer and are aged 70 or above. In this booklet you will find:

• Information about the healthcare system

• Information about what you should expect from your treatment and care

• Questions you could ask health and social care professionals

• Descriptions of the sort of support that is available

• Advice about what you can do if you cannot access a treatment because it is not routinely available.

 


 

New Publication – Understanding Lung Cancer

This booklet is about cancer that starts in the lung. This is called 'Primary Lung Cancer'.

The booklet answers some of your questions and helps you to deal with some of the feelings you may have.

There is also lists of other sources of support and information which you may find useful.

 


 

New Booklet for Younger People with Bowel Cancer

BowelCancerUKBowel Cancer UK has launched a new booklet called Younger people with bowel cancer: a guide for the under 50s. The aim of the booklet is to fill the gaps in the information that younger people receive when they are diagnosed with bowel cancer.

It gives an introduction to how bowel cancer can affect the body, emotions, relationships and everyday life, without duplicating the information resources that already exist. The booklet also contains personal experiences and signposts to other sources of information and support.

It was written with the help of people diagnosed with bowel cancer under the age of 50 and with input from health professionals.

If you would like a copy please get in touch:

Telephone: 01274 776688

E:mail: This email address is being protected from spambots. You need JavaScript enabled to view it.


 

Managing Breathlessness

A booklet for people experiencing breathlessness because of cancer or its treatments is now available. It offers advice on how breathlessness can be managed and includes a copy of a relaxation CD - Relax and Breathe

This relaxation CD helps you learn the ways to manage breathlessness at a time and place of your choosing. The inlay card features positions you can stand or sit in to help you relax, breathe gently and feel calmer. Produced with the Institute of Cancer Research.

 


 

Breast Cancer Care Launches Educational AppBreast Cancer Care

Breast Cancer Care has launched a free mobile app, helping people to recognise the signs and symptoms of breast cancer.

The Breast Awareness tool encourages people to get to know their breasts through a quiz, which asks users to identify whether a series of breast changes are breast cancer symptoms or not.

The app is available to download now on ITunes and Google Play.

 


 

Social Platform for People with Learning Disabilities

Multi MeA new version of Multi Me, a secure social platform created for people with learning disabilities, has been launched this month.

The site is designed to help people with learning disabilities communicate through the use of multimedia and to enable them to become more in control of their lives through personal goal setting and the participation of their online support network.

You can find out more about the platform on the Multi Me website.

 


 

Self Help LeafletsMental Health Self-Help Guides in British Sign Language (BSL) 

Northumberland, Tyne and Wear NHS Foundation Trust (NTW) worked in partnership with deaf health charity SignHealth to produce 14 mental health self-help guides in British Sign Language (BSL).

The project was supported by NHS England’s Regional Innovation Fund.

To view the new BSL self-help guides visit www.ntw.nhs.uk/pic/selfhelp or go to the NTW YouTube channel.

The videos will also be available as part of the health information in BSL on SignHealth’s website – www.signhealth.org.uk

 

 

  


 

Target Ovarian Cancer AppTarget Ovarian Cancer “Free Symptoms Diary Mobile Application”

Target Ovarian Cancer have launched a free Symptoms Diary app to help women who are concerned about ovarian cancer record their symptoms and talk to their GP.

The Symptoms Diary app is free to download, and will help women accurately record their symptoms and communicate more effectively with their GP. The app reminds women to record the symptoms they are experiencing and prompts women to book an appointment with their GP. Women can download a full report to take to their GP.

The app is also available as a printed version.

http://www.targetovariancancer.org.uk/about-ovarian-cancer/what-ovarian-cancer/symptoms/ovarian-cancer-symptoms-diary?ref=homepage-slider1

 


 

medikidsNew comic book will help young people understand lung cancer

Medikidz working in partnership with Roy Castle Lung Cancer Foundation has published Medikidz Explain Non-Small Cell Lung Cancer, the world’s first resource of its kind to help children understand and cope with the realities of life during what is often a very challenging time.

  

 

 

 

 


New Edition Available

There is a new edition of Roy Castle’s Lung cancer – answering your questions pack now out.Roy Castle Information Pack

It features a booklet and DVD on living with lung cancer and a booklet on managing lung cancer symptoms.

If you would like to receive a copy please get in touch:

Telephone: 01274 776688

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.


NHS Citizen – a route for the public to influence NHS England – a route for the public to influence NHS England

nhscitizen guideNHS Citizen is a project that aims to answer the question: what is the best way for NHS England to take into account the views of all the public when it makes decisions?

The blog outlines how a design has been developed to enable NHS England improve citizen participation and accountability. The ‘blueprint’ sets out to describe how citizens can have a genuinely active voice in NHS England decision-making.

The aim is that, once built, NHS Citizen will make it easier for the public to raise their healthcare issues, concerns and ideas with NHS England and a say in how they are addressed by the NHS. The design contains tools and processes to give citizens a more powerful voice in NHS decision-making and enable citizens to hold the board of NHS England to account.

Read about this in What is NHS Citizen?

You can visit the NHS Citizen microsite here.


Care and Support Jargon Buster!

Think Local Act PersonalThink Local Act Personal have updated and added new terms to their Care and Support Jargon Buster.

The Jargon Buster is a plain English guide to the most commonly used social care words and phrases and what they mean. A host of new terms have been added to the on the subject of commissioning – along with ‘Expert Patients Programme (EPP) ‘Universal Information and Advice’ and more.

For more information visit: Care and Support Jargon Buster


New free app enables users to stay in control of their health

Health FabricDigital health experts, Health Fabric, have released a new mobile application that enables anyone to stay in control of their health and wellbeing.

What makes the MyHealthFabric app unique is its simplicity for all to use, regardless of their personal needs. Health Fabric have a selection of self-management care plans that have been created by accredited organisations to help people who live with long term conditions keep control of their health.

Download the free MyHealthFabric app today on Android or Apple App Store


OPERA

For anyone worried about ovarian cancer in their family, the OPERA tool could help. OPERA is an interactive online self-assessment tool that aims to help women find out more about their genetic cancer risk.

OPERA asks the user around 10 questions about their family’s history before giving them a personalised assessment of their risk, including further information and support. Anyone can use OPERA in the comfort of their own home.

There is also a leaflet called ‘Are you worried about ovarian cancer?’ that looks at risk factors including family history and genetics. It also explains how to reduce the risk of developing ovarian cancer.

For OPERA visit http://www.macmillan.org.uk/information-and-support/diagnosing/causes-and-risk-factors/genetic-testing-and-counselling/opera.html

or for a copy of the leaflet please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. or alternatively telephone us on 01274 776688.


Rise above: a new health and wellbeing website for young people

Public Health England has launched a new website, Rise Above, which offers help for young people on how to deal with personal and societal issues.

Created by young people for young people, Rise Above aims to build emotional resilience in people between 11 and 16 years old, by equipping them with the skills and knowledge they need to make informed decisions, and help deal with the pressures of growing up.

It also encourages conversations about the key health and wellbeing issues that affect teens and young people.

http://riseabove.org.uk/

 

Read More

PanpalsPANPALS

Have you been affected by Pancreatic Cancer?

PANPALS is a new support group for the Yorkshire region.

Contact This email address is being protected from spambots. You need JavaScript enabled to view it. or speak to your nurse specialist for more information

 

 

 

 

The Croakies

CroakiesThe group meetings are held on the second Friday of every month at 12 noon until 2.30pm at Cancer Support Yorkshire, Smith Lane, Bradford.

The Croakies group provides information and support for Head and Neck cancer patients, their carers, relatives and friends.

For more information visit www.thecroakies.org.uk

 

Bosom Friends

Bosom FriendsBosom Friends has been running for over 30 years to provide help, support and friendship to women with breast cancer and their families.  The group meet on the third Wednesday of each month at 7pm at Cancer Support Yorkshire on Smith Lane.  The meetings are friendly social events, an opportunity to chat over a cup of tea where much of the emphasis is about getting on with life with or after cancer.  During the meetings we have talks from guest speakers or activities such as a quiz night, jewellery and cosmetics parties and a pamper evening.

The big event in October every year is the Fashion Show where all the models have been affected by breast cancer.  We have a pink tombola at the Baildon Gala, a mystery trip in July, a weekend away in November and a Christmas Party.

Bosom Friends (Bradford) is a registered charity and we rely entirely on fund raising and voluntary donations.  Funds raised are used in a number of ways to benefit women being treated in Bradford. In certain circumstances we can provide financial support e.g. to purchase specialised underwear.  We have recently funded and helped furnish and decorate the Dale Suite at St Lukes Hospital to make it more welcoming.

If you would like more information about Bosom Friends, the meetings, or feel you would just like to talk on a one to one basis with someone who has been through the same problems as yourself, please contact Pat Asquith on 01943 875572 or Liz Carrington on 01274 618982.

 

Prostate Cancer Support Group

Are you or your husband or partner affected by Prostate cancer?

Would you be interested in joining a group of like minded people, who meet regularly to discuss the issues surrounding prostate cancer?

This group has been set up in conjunction with Bradford Hospitals and is offered to everybody living in Bradford, Airedale, Calderdale, Huddersfield and the surrounding areas.

Meetings will be held Tuesdays 3pm—5pm at the Cancer Support Yorkshire, Daisy House Farm, 44 Smith Lane, Bradford, BD9 6DA

2016 meeting dates are: 23rd February /26th April/28th June/August 30th /25th October/13th December

If you need any further information please Diane Ramsay Urology CNS 01274 383158. This email address is being protected from spambots. You need JavaScript enabled to view it.

http://www.cancersupportyorkshire.org.uk/about-us/news/316-prostate-cancer-support-group.html

 

Leeds Lymphoma Association Support Group

Robert Ogden Macmillan Cancer Information Centre

St James's University Hospital

LS9 7TF

Have you been affected by Hodgkin or non-Hodgkin lymphoma? Would you like to meet with others who have experienced lymphoma or are living with the condition?
This very friendly and caring group meets on the last Monday of every month except August from 11am - 1.30 pm.

http://www.lymphomas.org.uk/information-and-support/lymphoma-support-groups/leeds-lymphoma-association-support-group

 

 

Read More

For the latest in new information and resources see our carefully selected links below:

 

Southampton showcases how PHRs benefit patients

Digital Health has reported a variety of different patient groups treated by clinicians from University of Southampton NHS Foundation Trust are all benefitting from the pioneering use of personal health records to help speed up their treatment, reduce hospital visits and better tailor care to their needs.

The patients using PHRs range from young people with renal conditions, making the difficult transition to adult care who require support. Men who are recovering from prostate cancer and traditionally have to visit a hospital every six months to discuss their PSA test results. And patients scheduled for operations, who would usually require a visit for a pre-operative assessment.

https://www.digitalhealth.net/2017/07/58997/

 

New resources for patients asking about social care

A new website providing resources to support older people and their relatives find information about social care in later life has been launched.

The website contains a leaflet and short film and covers basic information about social care, including what information different organisations can and cannot provide.

 

Toolkit to help healthcare professionals measure their impact on the public’s health

Public Health England (PHE) and the Royal Society for Public Health (RSPH) have newly published Everyday Interactions, a report which aims to support healthcare professionals to record and measure their public health impact.

The report and accompanying toolkit were developed with representative bodies and individuals working in the professional groups which they are aimed at, specifically nurses and midwives, Allied Health Professionals, pharmacy and dental staff. The report was also informed by a national survey of healthcare professionals and gained input from an expert advisory group.

Find the full report, calls to action, access to the e-learning and links to relevant case studies and resources here.

https://www.rsph.org.uk/our-work/policy/measuring-public-health-impact.html

 

Marie Curie launches information for people with a learning disability

Marie Curie has launched a series of easy read booklets for people with a learning disability and those who have difficulty with understanding or processing information. The booklets aim to help people in these groups to discuss their concerns about death and dying, and get the care and support they need.

All the booklets can be downloaded online, or you can order hard copies by emailing This email address is being protected from spambots. You need JavaScript enabled to view it.

 

Contact, Helath, Advice and Information Network

The aim of the CHAIN sub-group is to enable those with an interest in cancer care and research to connect and share knowledge and expertise. The sub-group currently has 2,800 members and as with the wider CHAIN membership, this includes people from all relevant professions and workplaces, who together possess a rich and diverse range of and skills and experience. If you have any colleagues, students or other contacts who might be interested to join CHAIN and the Cancer services & support sub-group please refer them to the website where they can register with CHAIN online:

http://www.chain-network.org.uk/join.html

 

Abbreviations, acronyms and other healthcare shorthand 

This article by Health Literacy Consulting, asks us to imagine what it’s like to be suddenly injured or ill.

You go to the A&E, receive HIPAA notification, and then get an IV, MRI, EKG, and CAT scan before being admitted to the ICU. While abbreviations and acronyms like these have their place, they can also lead to confusion.

Health Literacy Consulting’s How-To Tips include ways to communicate more clearly.

http://healthliteracy.com/2017/05/01/abbreviations-acronyms-and-other-healthcare-shorthand/

 

A Mile in My Shoes – Everyone has a story to tell

Every person has a story. This amazing listening experience, developed by The Health Foundation and the Empathy Museum, puts you in someone else’s shoes, literally, for a few precious minutes: professionals, clinicians, patients and carers. Real people from all parts of the health and social care spectrum.

A Mile in My Shoes invites you to experience the world from the shoes of someone else and listen to their story.

Pick your story, and listen to something amazing today.

http://listen.health.org.uk/?utm_source=MIMS-newsletter&utm_medium=email&utm_campaign=launch

 

New self-management guides for men with prostate cancer

Prostate Cancer UK has launched an exciting new way of sharing health information with men. With their interactive online guides men can quickly identify the information that is of interest to them and find out what could help them manage their symptoms and side effects better.

https://prostatecanceruk.org/prostate-information/guides/how-to-manage

 

How patients with brain tumours account for not using rehabilitation, psychosocial and community services health prof.

Research published by Research Gate has investigated why some adults with primary brain tumours do not use support services despite indications of a need for help.

https://www.researchgate.net/publication/315834833

 

Improving access to information: New PIF report – Perfect Patient Information Journey health prof.

PIF is delighted to publish a Summary Report of Phase 1 of our Perfect Patient Information Journey project.

A key plank of PIF’s mission is to campaign for high quality healthcare information and support to be an integral part of the patient journey.

In light of the growing move towards supporting people with long-term conditions to self-manage and share in decision-making about their care, PIF has launched a project aimed at creating a model pathway to support the ‘perfect patient information journey’ for people with long-term conditions.

https://www.pifonline.org.uk/wp-content/uploads/2017/05/PIF-PPI-Journey-4May17-final.pdf

 

Changing mindsets to enhance treatment effectiveness

This article discusses frames of mind that orient beliefs or expectations and how they can influence patients’ perceptions about treatment and self-efficacy. It proposes ways physicians might shape patients’ mindsets during clinical encounters to enhance treatment effectiveness.

http://jamanetwork.com/journals/jama/fullarticle/2619290

 

 

No Regrets – How talking more openly about death could help people die well

Read more at: http://www.macmillan.org.uk/documents/aboutus/health_professionals/endoflife/no-regrets-talking-about-death-report.pdf

 

Poor communication damages patient care

Poor communication in the NHS has a profound impact on patient care, staff burnout and public funds, a report published by Marie Curie warns.

The report, A long and winding road, says that better communication between healthcare professionals and patients can save costs, improve health outcomes and enhance the quality of experience of patients and the professionals who support them.

The full report can be accessed on the Marie Curie website.

 

Social media for health: toolkit launched

Skills for Health has today launched a comprehensive social media toolkit for the UK healthcare sector, providing healthcare organisations and professionals with sector-specific insight, advice and best practice on using social media effectively.

Download and share the social media toolkit here: skillsforhealth.org.uk/socialtoolkit

Personal Health Records: user insights

The Royal College of Physicians (RCP) has published a study exploring the needs of service users in relation to personal health records (PHRs) and the implications of these findings for providers, health and care professionals and commissioners.

Views were sought from people with various long-term conditions including diabetes, younger-onset dementia, depression, cancer, ulcerative colitis, renal failure and liver failure. Views were also sought from carers of people with autism, cerebral palsy, Down’s syndrome, dementia and mental ill health.

The full report and accompanying user journeys can be accessed on the RCP website.

 

Useful introduction to social prescribing

The King’s Fund have launched a guide to social prescribing, looking at whether social prescribing works and how it fits in with wider health and care policy.

The guide highlights emerging evidence that social prescribing can lead to a range of positive health and well-being outcomes.

You can read the guide on the King’s Fund website.

 

WE have their own Twitterversity which is designed to connect nurses, pharmacists and AHPs through the use of Twitter, it provides guides for beginners to expert users of twitter and also information on twitter chats and chat communities.  For more information visit:

http://www.wecommunities.org/resources/twitterversity

 

CHAIN is a successful online mutual support network of people working in health and social care.

http://www.chain-network.org.uk/index.html

 

Personal Health Records: learning from the voices of experience

PIF (the Patient Information Forum) have launched a new guide sharing the experiences of people who have first-hand experience of developing or using Personal Health Records.

Personal health records (PHRs) are a digital space for people to record and engage with their health and care information.

Personal Health Records: learning from voices of experience starts by exploring what sorts of PHRs are available and who might want them.

It discuss aspects of PHRs that the people we spoke to highlighted as being the most important, concluding with a checklist of key things to consider.

 

Cancer Research UK - Talking About Cancer - Online Course

Cancer Research UK have an online course specifically designed for Health Professionals on their website 'Talking About Cancer'

http://www.cancerresearchuk.org/health-professional/prevention-and-awareness/talk-cancer/talking-about-cancer-online-course#Talk_Cancer_MOOC0

 

What you need to know about obesity and cancer

Cancer Research UK has produced a newsletter for practice nurses providing need to know information about obesity and cancer and practical guidance on how to discuss weight with patients. Free print copies of Cancer Insight are available to download or order from the Cancer Research UK publications website.

There is also an online version of Cancer Insight providing additional information about obesity and cancer, including links to practical tools and resources.

This newsletter is part of a suite developed by Cancer Research UK for primary care health professionals. An edition on obesity and cancer designed for GPs and for pharmacists will also be available shortly.

 

Twitter For Healthcare Professionals

An Introductory Guide

Learn How to Tweet & Why You Should Consider Doing So

BC PATIENT SAFETY & QUALITY COUNCIL

https://bcpsqc.ca/blog/knowledge/twitter-for-health-care-professionals/

 

What a patient with a learning disability would like you to know

The latest blog in the BMJ series ‘What your patient is thinking’ has been written by Emily Smith, about her experiences engaging with health professionals.

Emily has Down’s syndrome and is an Expert by Experience at the University of Nottingham. After a visit to an emergency department (A&E), she was referred to her general practitioner.

The blog contrasts the interactions she had with the different healthcare professionals.

Emily concludes with three ‘what you need to know’ points:

• Talk to me, not my carer, but you can ask my carer for help if you need to.

• It helps when you use pictures to explain what is happening to me and don’t use upside down language.

• My friends and I do feel pain so give us pain relief like you would for someone who doesn’t have a learning disability.

You can read the blog on the BMJ website.

 

New online tool to help anyone understand health research

From patients and carers, to those who use health evidence as part of their daily jobs, finding, assessing and implementing the best quality information about health can be a challenge.

Studies show that many of us struggle with understanding whether evidence is of good quality or not, and at present, only a small section of people within society, mainly clinicians and researchers, are taught how to critically appraise scientific health evidence.

Understanding Health Research, developed by the University of Glasgow, is a new, free, interactive, online tool designed to help people go beyond the headlines to understand published health research for themselves.

The tool is designed to be useful for patients, carers, students, policymakers, those working in the third sector, health professionals and researchers.  It takes the form of an interactive website that guides the user through the process of understanding a piece of published health research, explaining and reinforcing key scientific concepts along the way (for example correlation vs causation).

You can access the tool at www.understandinghealthresearch.org

 

Supporting patients to ask three questions to improve shared decision making

A study has been published in the Health Expectations Journal to test the feasibility and assess the uptake and acceptability of implementing a consumer questions programme, AskShareKnow, to encourage consumers to use the questions:

1. What are my options?
2. What are the possible benefits and harms of those options?
3. How likely are each of those benefits and harms to happen to me?

The full article can be read in the Health Expectation Journal.

 

Obtaining information is challenging and time consuming for older people

Health Expectations has published a study on strategies used by older people living in Ireland to obtain information about community health and social services.
A qualitative exploratory design was used. Three focus groups were conducted with 17 community dwelling older people. A series of vignettes were used to guide discussion regarding hypothetical situations that approximated real-life scenarios for older people. Data were transcribed verbatim and analysed using content analysis.
The full study can be read in the Health Expectations journal.

 

CQC updates code of practice on confidential personal information

CQC (the Care Quality Commission) have updated their code of practice that governs how they obtain, handle, use and disclose confidential personal information.
You can find out more and access the updated code of practice on the CQC website.

 

Key questions to ask when developing information services

A toolkit published by TLAP (Think Local Act Personal) provides resources to help organisations develop an information and advice strategy. It contains a bank of resources designed around a six stage process for developing a strategy.

It aims to support organisations move from ‘getting started’ to considering ‘where are we now’ and ‘where do we want to get to’. It also considers what resources will be needed and how success will be measured.

The toolkit includes tools and resources to help you develop an information and advice service or provision strategy.

The toolkit can be accessed on the TLAP website

 

Information a focus of new ‘smartphone-ready’ health services

NHS England have published a summary of the key announcements they made during the Health and Care Innovation Expo last week.
For the full list of announcements see the NHS England website.

 

Toolkit to support health information needs assessments

The UK Health Forum has published a toolkit to help carry out health-related information needs assessments (INAs).
‘Undertaking an information needs assessment – a practice guide’ was created as part of a project that was funded by Public Health England from 2015-2016.
The toolkit is available as a free download from the UK Health Forum website.

 

Better awareness needed of link between cancer and obesity

Cancer Research have published research on public awareness of the link between obesity and different types of cancer.
Being overweight and obese is the single biggest preventable cause of cancer after smoking and is estimated to cause 18,100 cancer cases each year in the UK.
You can read the full report on the Cancer Research website.

 

A call for patient and public involvement in clinical research

The Royal College of Physicians (RCP) hosted a twitter chat on Wednesday 7 September, in partnership with WeDocs, an online community of healthcare professionals, talking about the role of patient involvement in clinical research.You can find a summary of the conversation Practical guides to support behaviour change projects.

 

Practical guides to support behaviour change projects

The Realising the Value consortium has published two guides outlining how the science of behaviour can help people to self-manage their health and well-being more effectively.

Supporting Self-Management is written for people who support those living with long-term conditions, or who help people avoid these conditions using person- and community-centred approaches. Health and care professionals, voluntary or community groups, peer supporters, carers, patient leaders will benefit most from this guide.
You can download both publications on the Nesta website.

 

Better information needed to help patients understand x-ray & scan results

The Patients Association and The Royal College of Radiologists have conducted a joint survey on patient experiences and views of undergoing diagnostic imaging. The report reveals patients’ actual experience of the referral-to-test result process. Patients were also asked for their views on proposals in the English Cancer Strategy for patients to have online access to their test results.

The report can be accessed on the Royal College of Radiologists website.

 

End of life care for older LGBT people: new guide

University of Nottingham and NCPC (National Council for Palliative Care) have published a guide on end of life care for older LGBT people

The guide is intended to help health and social care staff and volunteers to learn more about listening, understanding and responding to the unique needs of LGBT people.

You can find out more about the resource on the NCPC website.

 

Perfect patient information journeys – meeting report

On 16 June PIF’s Executive Circle meeting addressed our strategic aim of Integration and ‘Perfect patient information journeys‘ project.

A summary report of the key discussions at the meeting has been produced and is available to read here: PIF report-Executive Circle Meeting-13 June 2016 FINAL

 

HQIP shares new patient involvement guides

HQIP (Health Quality Improvement Partnership) has published three new and updated patient and public involvement (PPI) guides, with a special YouTube launch video created and presented by its Service User Network (SUN) members.

The resources, which are available to download from the HQIP website, include updated versions of HQIP’s PPI guidance, a guide to patient-led panels and a new e-learning toolkit suitable for newly qualified clinicians, patients and the general public.

Each resource is equipped with practical examples, case studies, tests and the most up to date PPI theory.

To download simply click on the links below:

PPI in quality improvement: the benefits of PPI and how to do it

Developing a Patient panel: a step-by-step guide

Introduction to QI for patients and public: eLearning

 

Marie Curie Helper Service

Marie Curie Helper is a volunteer befriending service – volunteers visit people with a terminal illness in their own homes for up to 3 hours every week.  Helper volunteers provide companionship, emotional and practical support – they do not provide clinical care or complete domestic tasks.

Helper volunteers can remain in the home, or can take clients into the community for social activities, attending groups, going to appointments. Helper volunteers are matched to clients who are typically within the last 12 months of life, but can continue to visit carers / families for 3 or 4 months in bereavement too.

The service is free and referrals can be from any source.  For more information visit: https://www.mariecurie.org.uk/help/helper-volunteers

 

More than 170,000 people in the UK who were diagnosed with cancer up to 40 years ago are still alive, a report has suggested.

People are twice as likely to survive for at least a decade after being diagnosed than they were at the start of the 1970s. It said better treatments and speedier diagnoses are among the reasons. But cancer can leave a legacy of side effects such as depression and financial difficulties, it also warned.

The report, called Cancer Then and Now, estimates around a quarter of survivors will have long-term issues that need support.

 

New app aims to aid communication, and support people with learning disabilities

Beyond Words are a publishing company that has been creating books with and for people with learning disabilities for over 25 years. They specialise in picture-based communication.

The company has launched a new app sharing over 1,800 pictures and 400 short stories (scenarios). It is designed to be used by carers, supporters or healthcare (and other) professionals to help communicate with and respond to concerns from young people or adults with learning disabilities.

There is a limited free version of the app to access via the Beyond Words website here.

 

Latest Updates

Latest update from Macmillan regarding the information that they produce.

https://be.macmillan.org.uk/Help/StockUpdates.aspx

If you would like any information ordering just e-mail me with your requests This email address is being protected from spambots. You need JavaScript enabled to view it.

 

HSCIC changing its name to NHS Digital

From July 2016, the Health and Social Care Information Centre (HSCIC) will change its name to NHS Digital.

HSCIC, now NHS Digital, is the national provider of information, data and IT systems for commissioners, analysts and clinicians in health and social care.

You can find out more about the work of the HSCIC, now NHS Digital, on their website here.

 

E-learning resource to support behaviour change projects

NHS Health Scotland’s Learning and Improvement Team has launched a revised version of their e-Learning resource Health Behaviour Change level 1.

The module is one of the most popular ever produced by Health Scotland with approximately 5,500 learners having completed it during its 4 year history.

To date the module has been popular with undergraduate students and professionals in the workplace as continuous professional development. Participants include NHS staff as well as wider public sector colleagues and has proved very popular with third sector organisations.

NHS Health Scotland’s virtual learning environment now as 37,000 registered users. It’s free to register and enrol in the learning and can be accessed from any internet enabled devise.

Click the link below to be taken directly to the module:

https://elearning.healthscotland.com/course/view.php?id=330

 

Framework published setting out patients’ right to choice (Health Prof & Cancer Info for this one please)

The Department of Health has published a choice framework setting out patients’ right to choice in healthcare.

The framework brings together information about patients’ rights to choice about their health care, where to get more information to help make a choice, and how they can complain if they have not been offered choice.

In some circumstances the patient has legal rights to choice and they must be given these choices by law. In other circumstances they do not have a legal right to choice but should be offered choice about their care, depending on what’s available locally.

A series of 8 Easyread leaflets accompany the framework document.

You can access the leaflets and framework on the Department of Health website here.

 

Hospital-based medicines helpline supports patients following discharge

A Southampton based study has explored the impact of providing a hospital-based medicines helpline for patients who have been discharged and returned home.

The objectives of this study were to establish what happened to patients after they contacted a hospital-based medicines helpline, to describe the nature of the calls received and to measure patient satisfaction. The study also set out to investigate whether access to patients’ hospital records or local expertise was necessary to answer the calls received.

To assess what happened to patients after contact with the helpline and their satisfaction with the service, consenting callers were sent a questionnaire. To capture the nature of calls received, and investigate how often access to local knowledge was required, a retrospective analysis of calls was performed.

The article can be accessed here (subscription required for access to full article).

 

Better Information and Support Needed for Carers

Carers UK’s State of Caring 2016 report shows that, one year on from the implementation of the Care Act 2014 – designed to improve support for carers carers in England are still struggling to get the support they need to care well, maintain their own health, balance work and care, and have a life of their own outside of caring.

For more information please follow the link

 

Addressing Inequalities in End of Life Care

People from certain groups in society are experiencing poorer quality care at the end of their lives than others because providers and commissioners do not always understand or fully consider their specific needs.

For more information please follow the link

 

Guide to Producing Health Information for Children and Young People

This resource aims to help anyone who communicates with children and young people about their health improve what they do, and shares practical advice as well as examples of current best practice in the field.

The Guide is free to download here: PiF-Guide Producing Health Information-Children and Young People-2014

 

Guide to Health Records Access

This Guide is about shared Personal Health Records (PHRs) – an area which has the potential to facilitate a step change to enable individuals to manage their care, and make decisions about their health.

The Guide is free to download here: http://www.pifonline.org.uk/wp-content/uploads/2014/11/PIF-Guide-Health-Records-Access-2013.pdf

 

Guide to Appraising Health Information

This Guide is about assessing the quality of information, and the processes used to develop it.

The Guide is free to download here: http://www.pifonline.org.uk/wp-content/uploads/2014/11/PIF-Guide-Appraising-Health-Information-2010.pdf

 

Help Women Assess Their Risk Of Ovarian Cancer

During Ovarian Cancer Awareness Month and following the recent publication in The Lancet of a study on hormone replacement therapy and the risk of ovarian cancer, you may see a rise in interest in this cancer. As awareness about cancer genetics increases through more media coverage and the regular mention of the BRCA genes, and as a growing number of people are diagnosed with cancer every year, you may talk to more women concerned about their or their relative’s risk of developing ovarian cancer.

A small number of ovarian cancers, about 10%, are thought to be due to an alteration in a gene running in the family. The two genes that are most often found to be altered in hereditary ovarian cancer are BRCA1 and BRCA2. These alterations are more common in certain populations such as those with Askhenazi Jewish ancestry.

There is a leaflet called ‘Are you worried about ovarian cancer?’ that looks at risk factors including family history and genetics. It also explains how to reduce the risk of developing ovarian cancer.

For anyone worried about ovarian cancer in their family, the OPERA tool could help. OPERA is an interactive online self-assessment tool that aims to help women find out more about their genetic cancer risk.

OPERA asks the user around 10 questions about their family’s history before giving them a personalised assessment of their risk, including further information and support. Anyone can use OPERA in the comfort of their own home.

http://www.macmillan.org.uk/information-and-support/diagnosing/causes-and-risk-factors/genetic-testing-and-counselling/opera.html

To order the leaflets please e-mail This email address is being protected from spambots. You need JavaScript enabled to view it.


Increasing awareness of young people’s rights in healthcare

The NHS Youth Forum has launched a series of posters for young people.

They identified from discussions with young people that they were confused about their rights when receiving health services. Even where young people thought they knew their rights, they were worried about asking. The series of posters focus on young people’s right to consent, their right to complain and their right to comment and give feedback on the services that they receive.

The posters come with an overarching leaflet that gives more information about each topic. The leaflet is also available in audio and easy read versions.

You can read more about the work of the NHS Youth Forum here.


 Social Platform for People with Learning Disabilities

Multi MeA new version of Multi Me, a secure social platform created for people with learning disabilities, has been launched this month.

The site is designed to help people with learning disabilities communicate through the use of multimedia and to enable them to become more in control of their lives through personal goal setting and the participation of their online support network.

You can find out more about the platform on the Multi Me website.


Self Help LeafletsMental Health Self-Help Guides in British Sign Language (BSL)

Northumberland, Tyne and Wear NHS Foundation Trust (NTW) worked in partnership with deaf health charity SignHealth to produce 14 mental health self-help guides in British Sign Language (BSL).

The project was supported by NHS England’s Regional Innovation Fund.

To view the new BSL self-help guides visit www.ntw.nhs.uk/pic/selfhelp or go to the NTW YouTube channel.

The videos will also be available as part of the health information in BSL on SignHealth’s website – www.signhealth.org.uk


Communicating Risk in Health Information

Risks and statistics are an essential part of patient information.

What is a person’s risk of developing a particular condition in their lifetime, or of having a certain symptom if they have that condition? What are the risk factors for a disease, and can people change these? What is the chance of a treatment or procedure working? And what is the risk of getting the different side-effects and complications that can come with it?

Yet, many patients are unable to comprehend basic statistics, never mind navigate their way through the reams of data that may come with health information comparing treatment options.
The Patient Information Forum (PiF) has published four new factsheets that outline key considerations for communicating risk, and that will support information producers to follow the best practice in this area.
• Communicating risk – introduction

• Communicating risk – perceptions of risk

• Communicating risk – know your numbers

• Communicating risk – illustrating risk


NHS England’s accessible information standard is approved:

http://www.england.nhs.uk/ourwork/patients/accessibleinfo-2/


New Resources to Support the Creation of Better Health Information

The Patient information Forum (PiF)has launched four new resources to provide practical support and guidance for people involved in the creation of health information for patients, service users and the public.

• A beginner’s guide to planning and developing health information

• Communicating the quality of evidence

• Good referencing

• Working with clinical experts


Haelo’s Year of Patient Stories

Haelo, an Innovation and Improvement Science Centre based in Salford, have launched a year of patient stories – a series of films to highlight issues in healthcare as seen through a patient’s eyes.

The films present situations familiar to many of us, but the project creators hope that by hearing directly from the people who are living through and with the situation we will see something new, an experience the project has termed as ‘vuja de’.

The first story from Brenda is available to view here now.  It highlights the challenges of managing multiple medicines and staying safe.

You can follow Vuja De: Haelo’s Year of Patient Stories on the Twitter by following @_Haelo and the hashtags #PatientStories and #VujaDe


A Guide To Engaging Men In Self-Management Support

The Men’s Health Forum’ has published a new guide, ‘How to engage men in self-management support‘, that pulls together the findings of the Self Man Project at York University, the first ever analysis all the available evidence on men’s experiences and perceptions of various self-management support interventions and activities.

The management of long-term conditions (LTCs) is one the greatest challenges facing the NHS. Already, LTCs account for 70% of the money spent on health and social care in England including half of all GP consultations. And the number of people with multiple LTCs is expected to increase by one million in the decade in 2018.

Over half of men have at least one LTC. A research group at York, Manchester, Glasgow and Glasgow Caledonian Universities have conducted a systematic review of qualitative research looking at how to ensure that programmes supporting people with LTCs reach them?

This ‘How To…’ Guide condenses the findings from that review into practical, user-friendly advice for those whose job it is to design and deliver LTC services.

A free download of the Guide is available here.


**NEW** Patient Information Forum Toolkit: Creating health information that works

The Toolkit brings together best practice guidance, with practical resources, and the evidence behind the statements. It contains case studies from information producers sharing how they have approached the key steps contained within the guidance.

The guidance and resources are organised into four themes:

• Create accurate and evidence based health information

• Communicate information clearly

• Ensure information has impact and relevance

• Involve users in creating information

http://www.pifonline.org.uk/toolkit/

Social media for health: toolkit launched

Skills for Health has today launched a comprehensive social media toolkit for the UK healthcare sector, providing healthcare organisations and professionals with sector-specific insight, advice and best practice on using social media effectively.

Download and share the social media toolkit here: skillsforhealth.org.uk/socialtoolkit

Read More